Support Groups For Rare Diseases

1:34

Connecting Rare Disease Patient Communities and Advocacy Groups
PCORI
89 views
1:28

The Importance of Advocacy Groups for Rare Disease Patients
CheckRare
64 views
57:24

Natural History Studies for Rare Diseases
U.S. Food and Drug Administration
73K views
57:10

Rare Diseases are Not Rare – A Training on Rare Disease Resources
Network of the National Library of Medicine [NNLM]
2.4K views
55:41

How can the medical community support the rare disease community?
Austin PBS
180 views
2:18

The Important Role of Advocacy Groups in Rare Diseases
CheckRare
35 views
20:06

How to save patients living with Rare Diseases | Samuel Wiafe | TEDxTudu
TEDx Talks
745 views
57:19

Self-Advocacy and Care Coordination
National Organization for Rare Disorders (NORD)
2.2K views
39:29

CHEST Bridging Specialties: Timely Diagnosis of ILD by Dr. Amirah Abdullah
WVCTSI Project ECHO
31 views
3:19

Rare Disease Advocacy Groups Need to Join Together
Rare Disease Report
150 views
4:09

Rare Disease Advocacy
CheckRare
127 views
5:18

10 Tips for Newly Diagnosed Rare Disease Patients and Families
National Organization for Rare Disorders (NORD)
8.2K views
31:11

From Data To Cures: Speeding The Way For Rare Diseases
National Organization for Rare Disorders (NORD)
457 views
59:16

Improving the Diagnosis of Under-Recognized and Rare Diseases in Asians
Stanford Health Care
1.3K views
1:53:05

Rare Disease Day 2022
David Geffen School of Medicine at UCLA
296 views
3:10

Rare Disease Advocacy Groups
CheckRare
41 views
4:26

Patients Matter: How Rare Disease Patients Can Move Scientific Discovery Forward
U.S. Food and Drug Administration
3K views
9:32

Coordination of Rare Diseases at Sanford is Uniting Researchers
Sanford Health
1.6K views
6:18

Rare Genetic Disorders
Mount Sinai Health System
1.9K views
51:26

Walk In Our Shoes: The Experience of Rare Disease Patients
National Organization for Rare Disorders (NORD)
1.2K views
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